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Drazen JM. Harvard Medical School, Boston, MA, USA. jdrazen@nejm.org7 j$ L1 r4 x8 g' h
* s6 i3 W/ J$ B9 O# N3 S Sci Eng Ethics. 2002 Jul;8(3):407-114 L+ b1 s0 D# Q# }. Q) n$ o
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Data gathered by investigators are used to test the validity of a specific scientific hypothesis. When the hypothesis relates to the biology of a disease or its treatment, then data sets may contain specific and identifiable medical information. Since the information in a clinical data set was gathered to test a specific hypothesis and there is usually a sponsor interested in the outcome, the issue of who owns the data is a critical one. In my opinion, data from both publicly and privately funded research should be made available, in a format that protects confidentiality and intellectual property rights, to interested and responsible parties within a reasonable period of time after publication
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下载地址 www.bioethics.ntnu.no/biobanks/documents/drazen.pdf |
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